Detalhe da pesquisa
1.
Rates of Actionable Genetic Findings in Individuals with Colorectal Cancer or Polyps Ascertained from a Community Medical Setting.
Am J Hum Genet
; 105(3): 526-533, 2019 09 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-31422818
2.
Preferences of biobank participants for receiving actionable genomic test results: results of a recontacting study.
Genet Med
; 23(6): 1163-1166, 2021 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33603197
3.
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Am J Hum Genet
; 100(3): 414-427, 2017 Mar 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-28190457
4.
Workflow Requirements for Cost-of-Care Conversations in Outpatient Settings Providing Oncology or Primary Care: A Qualitative, Human-Centered Design Study.
Ann Intern Med
; 170(9_Suppl): S70-S78, 2019 05 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31060061
5.
Family history and the natural history of colorectal cancer: systematic review.
Genet Med
; 17(9): 702-12, 2015 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-25590981
6.
Human-Centered Design Study to Inform Traceback Cascade Genetic Testing Programs at Three Integrated Health Systems.
Public Health Genomics
; 26(1): 45-57, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36871550
7.
Environmental scan of family chart linking for genetic cascade screening in a U.S. integrated health system.
Front Genet
; 13: 886650, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-36035175
8.
Feasibility, acceptability, and limited efficacy of health system-led familial risk notification: protocol for a mixed-methods evaluation.
Pilot Feasibility Stud
; 8(1): 174, 2022 Aug 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-35945632
9.
Usefulness of mobile apps for communication of genetic test results to at-risk family members in a U.S. integrated health system: a qualitative approach from user-testing.
Health Policy Technol
; 10(2)2021 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-34040952
10.
Implementation matters: How patient experiences differ when genetic counseling accompanies the return of genetic variants of uncertain significance.
AMIA Annu Symp Proc
; 2021: 950-958, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-35309003
11.
Patient and Family Preferences on Health System-Led Direct Contact for Cascade Screening.
J Pers Med
; 11(6)2021 Jun 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-34200550
12.
Feasibility and Assessment of a Cascade Traceback Screening Program (FACTS): Protocol for a Multisite Study to Implement and Assess an Ovarian Cancer Traceback Cascade Testing Program.
J Pers Med
; 11(6)2021 Jun 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-34208188
13.
Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network.
J Pers Med
; 10(2)2020 May 13.
Artigo
em Inglês
| MEDLINE | ID: mdl-32413979
14.
"You Really Do Have to Know the Local Context": IRB Administrators and Researchers on the Implications of the NIH Single IRB Mandate for Multisite Genomic Studies.
J Empir Res Hum Res Ethics
; 14(3): 286-295, 2019 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31113270
15.
A phenome-wide association study to discover pleiotropic effects of PCSK9, APOB, and LDLR.
NPJ Genom Med
; 4: 3, 2019.
Artigo
em Inglês
| MEDLINE | ID: mdl-30774981
16.
Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience.
J Pers Med
; 8(1)2018 Jan 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-29301385
17.
Building a family network from genetic testing.
Mol Genet Genomic Med
; 5(2): 122-129, 2017 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-28361098
18.
Physician Communication Training and Parental Vaccine Hesitancy: A Randomized Trial.
Pediatrics
; 136(1): 70-9, 2015 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-26034240
19.
Prospective participant selection and ranking to maximize actionable pharmacogenetic variants and discovery in the eMERGE Network.
Genome Med
; 7(1): 67, 2015.
Artigo
em Inglês
| MEDLINE | ID: mdl-26221186